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Humaira Kanwal
Madiha Mukhtar
Sarfraz Masih


Educational Intervention, Caregiver Knowledge, Inherited Hemolytic Anemia


Background: Hemolytic anemia is widespread in Pakistan (2-5% prevalence), primarily due to glucose-6-phosphate dehydrogenase deficiency. Caregiver knowledge is crucial for improving the quality of life of affected children. Educating and supporting caregivers is essential for optimizing care.

Objective: This study aimed to evaluate the impact of an educational intervention on caregiver knowledge regarding child care with inherited hemolytic anemia.

Methods: An experimental design was conducted at children hospital Lahore, involving caregivers of children diagnosed with inherited hemolytic anemia. The educational intervention comprised structured sessions focusing on understanding the disease, its management, and strategies to enhance the quality of life for affected children. A two group’s base study was conducted using standardized measures to gauge caregiver knowledge regarding the disease.

Results: The research revealed that a substantial proportion of mothers were between the ages of 29 and 38, had completed secondary education. Furthermore, a significant number of affected children were in the 1-3 age range, mostly boys. There was a notable difference in mean scores of maternal knowledge between the control group (8.78+2.254) and the intervention group (10.83+1.669).

Conclusion: Educational interventions empower caregivers to support children with inherited hemolytic anemia, enhancing management and quality of life outcomes. These initiatives are vital in chronic disease management, necessitating further research to investigate their long-term impacts and sustainability across diverse healthcare settings.

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